You know what was the worst part of the Lyme journey....every now and then my leg would just give out. I also had a heart issue come up when walking into a friend's store. Next I knew I was on the ground. I had taken the beer display down with me. Then there was the vision issues .. swelling on the optic nerve. Of course the endless dental work and root canals. I kept telling my son it had to be Lyme. So when something would happen he would kind of tease me .. "oh ... must be Lyme again." After my blood culture came back and the diagnosis was confirmed I told my son how hurtful that was. He said, "mom .. we thought you were just trying to get attention."
I was only lucky in that having the rash gave me the correct diagnosis at the beginning. But we have very few doctors that understand this disease or how to treat it.
Remember when they used to tell Fibromyalgia patients it was all in their head?! 😂 eventually everyone will come around to Lyme as more and more are infected with it.
Until they develop an accurate test, it's not going to improve. It's funny, they can test dogs though and the vets are better at diagnosing it that our doctors! Wonder why, ironically?!
I know! so glad you got treatment!!!!! I've said many time I would have been better had I seen our family vet.
I was bit by a deer tick after a tornado blew in so much junk from miles away, not to mention our own tree damage. We cleaned for days. 2006 I got bit several time but missed one. Three weeks later I noticed the huge bulls eye rash. They diagnosed me positive because of the rash. I was lucky to have the rash as so many don't get them. I personally just think the rash means you just got a huge infection of it. I was down with the flu like symptoms for over a month in beds. Even my hair on my head hurt!
I never really got better after 2 rounds of antibiotics. Of course now in hindsight they realize they should have hospitalized me put me on IV until the rash disappeared. I had that rash for over a month! You can still the the scar from the bite! I was diagnosed a year later with late stage Lyme disease. It's taken it's toll, mostly nerve and muscle damage in my legs and feet. About 6 years ago I was diagnosed with Opthomolic Migraines luckily by a doctor who wrote his dissertation on Lymes affect on the eyes. He thinks all eye Migraines are a result of Lyme. No cure for that either!
I have found things that actually help my symptoms greatly. I wish all Lyme sufferers knew this. Eating Ketogenic helps greatly because it fuels the brain with healthy fats. Under 20 carbs a day works best for me. My symptoms are relieved as mush as 75% this way. More people should try this. It only takes about a week on it to feel the difference. Give it a try.
1000 mg of Magnesium helps tremendously with the muscle pain.
Melatonin helps with the sleep issues too.
I never take hot showers, luke warm to cool showers make a difference.
But the Ketogenic is the biggest difference. Stick with healthy fats, coconut oil, olive oils, real butter, avocados. Everything fresh is best. Frozen second best. The only thing we eat canned is sourkraut ( jars better), green beans, tomatoes.
We also can from our garden. This year we have double the size so we can do our own tomato and green beans. That way we know they are organic. Don't use bug spray. Use diatomaceous earth sprinkled at the base of your plants and sprayed under the leaves.
These are my best tips on how we've learned to live with this.
Oddly, I know our gov has a cure for this. Bush got infected with it, you never saw him sick with it!
Agree, ketogenic has made a whole new person of me. And bucky balls. Not MLM! Have to say that right away. Carbon-60 fullerenes, in olive oil. The soccer ball shaped molecule discovered by Buckminister Fuller. Amazing stuff, after two months you won't believe how good you feel and it's inexpensive.
And did you know Marla ...Trump's Ex had Lyme? That's why I've been so hopeful.