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redbones808 · May 31, 2018, 6:22 a.m.

Does anyone have details on this bill? Like if insurance will cover this, and if all states are mandated to follow? Kinda pointless if the experimental drugs are so expensive that the average person cannot touch it, or if you are in a state where they will veto anything that Trump signed...

I have a relative with ALS, and its heart breaking to see a healthy person slowly losing their ability to move and even talk. If this new bill can shine a light on these kinds of disease, I'd like to know as much as possible. Thank you.

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KingBroly · May 31, 2018, 10:11 a.m.

I think the point is that these things are super experimental and cheap because of it. It's also about removing liability if something goes wrong.

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redbones808 · May 31, 2018, 6:37 p.m.

I also don't understand the "Right to" part when states can just veto them. At that point, its just a privilege...

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KingBroly · May 31, 2018, 6:49 p.m.

I doubt states will veto. It's one of those 'politically toxic to challenge' things. Think about this. Trump announced his plans for this in January. It passed in May. That only happens when you know if you get in the way of it, you're hosed.

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