Megan?
Same Megan as this one?
https://www.adn.com/nation-world/2017/02/28/the-backstory-behind-the-rare-disease-patient-trump-highlighted-to-congress/
2017: The backstory behind the rare disease patient Trump highlighted to Congress
Midway through his address to Congress, President Donald Trump paused to highlight the inspiring story of Megan Crowley, 20, whose life is a testament โ in part โ to American entrepreneurship.
When Megan was diagnosed with an extremely rare disease as a baby, her father, John Crowley, founded a small biotechnology startup to try to cure Megan and her brother โ an effort that ultimately grew into an 80-person company and helped create the drug that keeps Megan healthy today.
Megan's affliction, Pompe disease, is exceedingly rare. The course of the disease varies by patient, but it causes children's muscles to weaken and, eventually, their lungs may fail. Today, thanks to the work of her father โ and the American biotechnology industry โ Megan is a sophomore at University of Notre Dame.
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