Been up all night chemo kicking my ass insomniac anon here guys. Chronic myeloid leukemia variety been diagnosed with. Oral TKI considered as targeted therapy is working like a charm. Was damn near on death bed last year and now cytogenic and molecular studies showing minimal residual disease. Normal protocol is to keep dosing for life, however some people have completely reached what the doctors call Complete Molecular Response, akin to remission in other types pf cancer and can discontinue therapy. For me, not there yet and may never be…? This medication may have fallen through the cracks of the elite I have to wonder.
The medication is big $$$$ like $15,000 a month but fully expecting POTUS getting these drug companies to eventually reduce costs. Lucky me cuz I’ve got great insurance thru my employer with monthly $90 co-pay.
Anyway, the medication really fucks with the CNS and relying daily on benzos and a Parkinson drug that is used off label for RLS that I have a bad case of and as a bonus tames the shakiness or tremors I tend to get.
Sorry for the long prelude and as much time as I spend on this board, I should probably know where to look for some other anons dealing with the wonderful effects of chemo. Thought I remember a section on this board regarding various health issues and possible less harmful alterative means of dealing with side effects and having to take even more meds to feel even somewhat normal. If so, would appreciate a point in the right direction.
WWG1WGA..thanks you guys are awesome!