dated but relevant
"The government owns your DNA. What are they doing with it?"
In most states, blood spots are transferred to long-term-storage banks run by state departments of health, where they are retained for at least a couple of years. But in 12 states, samples are kept in a biobank for 21 years or longer. That's because, increasingly, health departments are using—and sharing—the genetic information for research and analysis. This practice has accelerated since 2009, when the National Institutes of Health (NIH) awarded a contract to the American College of Medical Genetics and Genomics (ACMG) to establish a Newborn Screening Translational Research Network and develop a national repository of newborn DNA "stored by state newborn screening programs and other resources." Meanwhile California, Iowa, Michigan and New York already participate in a virtual repository, which allows researchers to access data—and in some cases the stored infant blood spots themselves—for their investigations.
In reality, a health report may just be the most enticing carrot 23andMe was able to dream up in order to get your DNA in its computers. As noted by the authors of an article in The New England Journal of Medicine, "23andMe has…suggested that its longer-range goal is to collect a massive biobank of genetic information that can be used and sold for medical research and could also lead to patentable discoveries." This characterization is not denied by 23andMe, which tells Newsweek, "The primary mission of our company is to accelerate genetic discovery."
The real money, then, isn't selling you a health analysis; it's in using and selling your data for biomedical research.
https://www.newsweek.com/2014/08/01/whos-keeping-your-data-safe-dna-banks-261136.html